FCSFamily Response

Method and privacy

What this response collection can and cannot show

The goal is a useful, transparent record of family experience, not a claim of scientific certainty.

01

Who can respond

The invitation is shared through FCS family networks. A shared code and good-faith attestation reduce unrelated submissions. They do not independently verify enrollment or create a probability sample.

02

How duplicates are limited

An email address is converted into a one-way hash and discarded. A later submission using the same normalized email replaces the earlier response and creates a new private edit link. The email itself is not stored.

03

How identity works

A letter signer types their full adult name as a signature and identifies a general FCS connection. Quantitative answers are always aggregate-only. Written statements have a separate private, theme-only, anonymous, or named choice.

04

How questions were written

Questions ask about one direct experience at a time, include negative and positive response options, allow skipping, and separate experience ratings from policy preferences.

05

How results are reported

The results page shows raw counts, percentages, exact wording, and the number who answered each item. Public statements appear only after privacy review. The site does not average ordinal scales or hide skipped items inside a favorable score.

06

Important limitation

This is a voluntary, self-selected online collection associated with an advocacy letter. It can describe respondents. It cannot establish the views of every FCS family, and no margin of error applies.

Question design references

Built from established survey guidance

The questionnaire follows guidance on neutral wording, single-concept questions, complete response choices, open questions before detailed prompts, respondent burden, and transparent reporting.

Pew Research CenterWriting Survey QuestionsAAPORBest Practices for Survey ResearchUK Parliament PetitionsPrivate email use and duplicate controlInformation Commissioner’s OfficeData minimisation

Data kept private

The form does not ask for children’s names because they are not needed to sign, limit duplicates, or describe an adult’s FCS connection. The public site never displays email addresses, private experience narratives, private concern follow-ups, or raw submission metadata.

Anonymous on the results page means the person’s name is not displayed with a public statement. If the same submission also signs the letter, the organizer can see that the signature and survey belong to one submission. Infrastructure providers also process network and request data, so the site does not promise anonymity from every service involved in transmission and hosting.

Requested public statements remain pending until the organizer checks for children’s names, private medical information, contact information, threats, or accidental disclosure. Statements are approved as submitted or kept private. They are not silently edited.

Response data is used only for this letter, family briefing, and related board presentation. It is not used for marketing or unrelated outreach. It should be deleted when the parent response effort and necessary follow-up are complete.

After saving, a respondent receives a private edit link. The link is stored only as a one-way hash and can reopen that response without an account. Anyone with the link can use it, so it should be kept private. A respondent may also replace an earlier response by submitting again with the same email, or withdraw it here. Withdrawing invalidates the private edit link.